What Was #100X100 2010?

1 in 100 children are born with a heart defect.

April 10th is the 100th day of the year.

#100X100 was the name of the game!

So what was the game? #100X100 was a grassroots volunteer initiative – experiment, really – using social media for an advocacy and awareness campaign.

In the last few hours of April 9th about a dozen volunteers added a “tip” to the most popular locations in their city on foursquare that said:

“1 in 100 children are born w/ a heart defect. Pulse-Ox Screening saves lives! You can too – check in w/ the hashtag: #100X100”

At the time foursquare’s old tip system was in effect, which meant that as the most recent “tip” anyone who used foursquare saw it when they checked into these locations via their smartphone on April 10th, 2010.

In the immediate we raised awareness just by informing someone new of how often Congenital Heart Defects (CHD) occur. But that was just the beginning…

Most people who use foursquare sync their check-ins with twitter and/or facebook. When they checked in with the hashtag #100X100 everyone who followed them will saw it. If they clicked on it they found our page (@onehundredsqd on twitter, #100X100 on facebook) which lead them here…

…where they read more about Congenital Heart Defects, CHD Lobby Day, and how they could save lives by taking a few moments to support the Congenital Heart Futures Act and the nomination of screening for Critical Congenital Heart Disease using pulse oximetry to be added to the national newborn screening panel.

Out of the blue, on the morning of April 10th, 2010 a donor offered to match $1 for every use of the #100X100 hashtag across foursquare, facebook and twitter after seeing it being used over and over again and coming to this site to read what it was all about.

What happened?

In those 24 hours $25,000 was raised, funding lifesaving heart surgery for 12 children in developing countries.

What else happened?

Thousands of you took the time to call or email your representatives about the Congenital Heart Futures Act or about Pulse Oximetry and the National Newborn Screening Panel. During our visits with representatives on Lobby Day we were told over and over and again about your support, sometimes happening as we were there! On October 15th, the committee recommended that Health Secretary Sebelius make pulse-oximetry screening of all newborn for critical congenital heart defects part of the national panel. She has until April 15th, 2011 to answer.

Did you participate in #100X100? If so, thank you!! You helped save 12 lives across the world and paved the way for a future where less children die from undiagnosed heart defects in this country.

One Response to “What Was #100X100 2010?”

  1. Thank you for what you’re doing to raise CHD awareness. The more people join in, the more little lives we can save.

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